Race for RP

Race for RP supports research, awareness programs, and cares for those who are affected by relapsing polychondritis ("RP") and related diseases. For more information, visit https://raceforrp.org/. About Relapsing Polychondritis RP is an inflammatory disease that affects the cartilage. This horrible disease can change the shape of affected patient’s nose, cause ears to be painful, red and deformed, lead to red painful eyes, as well as pain and swelling of multiple joints including shoulders, elbows, wrists, fingers, knees, ankles and toes. It can cause pain on the anterior part of the chest due to inflammation on the costochondral joints as well as the rib cage. Patients often complain of a sore throat, shortness of breath and voice changes. In some extreme cases, air passages can collapse due to uncontrolled inflammation leading to death. For more information, visit https://bit.ly/RP_Poster and watch the video which outlines details about the disease. RP Study at the NIH and Friends of Patients at the NIH If you would like to participate in a relapsing polychondritis study at the NIH and be considered for financial assistance (for patient-related travel) from the Friends of Patients at the NIH, please contact: Wendy Goodspeed, RN Research Nurse Specialist National Institutes of Health goodspew@mail.nih.gov About RPASF RPASF’s purpose is to increase awareness about relapsing polychondritis, provide for those who are affected by RP, support research to advance a cure, and promote quality care for patients with RP. For more information, visit https://www.polychondritis.org/.