The Hope-JG Foundation Intends to Open ALS Residence in Maine, Driven By Technology
Industry: Non Profit
World class technology will enable unprecedented independence to ALS/MS patients. Foundation will partner with national ALS Residence Initiative to offer hope to families
Windham, ME (PRUnderground) May 27th, 2014
The Hope-JG Foundation officially launched on May 6th and announced the organization’s two initial missions on its website (http://hope-jg.org).
“Our two initial missions are closely linked.” said John Gregoire, Co-Founder. “Our first is to partner with an existing long term care provider to see that an ALS/MS Residence, similar to the one named after Steve Saling at The Leonard Florence Center for Living in Chelsea, MA.”
“We will be working in close partnership the ALS Residence Initiative (ALSRI), a national movement started by Steve Saling to replicate the First of its kind in the nation residence in Chelsea.” added Linda Gregoire, Co-Founder. “The facility is based on the Green House Project model (http://thegreenhouseproject.org) which flips the traditional nursing home concept on its head. The emphasis is on providing an unprecedented level of independence for ALS victims and those with other neurodegenerative diseases even if they are paralyzed or living with a ventilator – through world class technology.”
“Our second mission,” said John, “will be to inspire and promote innovative technologies which enhance the lives of families with debilitating diseases. We refer to these as “Innovators” on our website. We have identified one Innovator to date. Dr. Rupal Patel has developed a methodology for giving speech impaired individuals who use Speech Generating Devices, their own unique voice, rather than the limited selection of synthesized voices currently in use. See more about VocalID here.
The Hope-JG Foundation website states that the foundation exists to support families fighting neurodegenerative disease. John was diagnosed with ALS in 2007. He and Linda have said they understand, better than most, the ripple effect a diagnosis has on the immediate and extended family and friends of the patient.
As an ALS charity, The Hope-JG Foundation has fund raising and awareness events planned in the months to come. Members of the team are also available for speaking engagements and to the media for interviews.
About The Hope-JG Foundation
The Hope-JG Foundation is a 501(c)(3) corporation which was formed specifically for the benefit of families with ALS, MS and other neurodegenerative diseases. Our primary missions are twofold: To establish an ALS/MS Residence in Maine. – To inspire and promote innovative technologies which enhance the lives of the disabled and their families.